INFORMATION,
AWARENESS AND RESEARCH
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UNOS,
the United Network for Organ Sharing.
All patients accepted onto a transplant hospital's
waiting list are registered with the UNOS Organ Center, where
a centralized computer network links all organ procurement
organizations and transplant centers.
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SRTR,
the Scientific Registry of Transplant Recipients website
provides all the information currently available in the
Statistics, Reports, and Summary sections of the UNOS
Transplant Patient Data Source.
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NMDP,
the National Marrow Donor Program, an organization helping
patients through stem cell transplantation.
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The Roche
Organ Transplantation Research Foundation is a registered
Medical Research Charity whose mission is to advance the
science of organ transplantation by supporting research
programs through operating grants directly allocated to
research projects .
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TransWeb,
a comprehensive transplant-oriented website, which includes
current statistics, news items, donation issues, patient
education, and an excellent reference section.
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Lifegift's
mission is to provide community benefit by ethically,
effectively and efficiently recovering appropriately
transplantable organs and tissue to give the gift of life.
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Organ
Donation, an informational site sponsored by the Health
Resources and Services Administration (HRSA) and the Department
of Health and Human Services (DHHS).
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Coalition
on Donation is a not-for-profit alliance of local
coalitions and national organizations who have joined forces
to promote organ and tissue donation.
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Donor
Alliance is a nonprofit organization that facilitates the
recovery and donation of organs and tissues in Colorado and
Wyoming.
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Transplant
Awareness, Inc. (TAI) is a nonprofit corporation run and
operated by volunteers who are all organ transplant
recipients. Products designed to increase organ donor
awareness (such as T-shirts and license plate frames) are
offered for sale. The site also has an impressive Transplant
Resource Guide.
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Transplant
Communications, Inc., a twice-monthly online newsletter
providing up-to-the-minute information on developments in
organ, tissue, eye, and bone marrow procurement and
transplantation.
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The
Eurotransplant Foundation is a non-profit organization
that aims to encourage organ transplantation. See transplant
issues from a European perspective! Another comprehensive site
with links to newsgroups, online journals, and other
transplant organizations.
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The
National Foundation for Transplants is a
national non-profit organization that offers a program of
healthcare and financial support services and patient advocacy
for transplant candidates, recipients, and their families. An
excellent resource for fund raising information.
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The
Coalition on Donation is a national
non-profit alliance of national organizations and local
coalitions dedicated to educating the public about organ and
tissue donation.
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The
Kids Organ Donor Educational Program is
an educational program designed to teach students about the
functions of the major organs of the body and the importance
of organ donation.
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The
Living Bank International
is
a non-profit
organization dedicated to the enhancement of organ and tissue
donation and transplantation.
The
Australia and New Zealand Dialysis and Transplant Registry (ANZDATA)
collects a wide range of statistics that relate to the
outcomes of treatment of those with stage renal failure.
The
European Federation of Immunogenetics is dedicated to
information relating to Histocompatibility and Immunogenetics
(H&I).
The
IMGT/HLA Database is a specialist database for sequences
of the human major histocompatibility system.
Novartis
Transplant provides medical professionals with information
on patient management and post-transplant therapeutic options.
It also provides patients, their families and friends with
information and resources to guide everyone through the
transplant journey.
Patient Support Organizations
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AAKP,
the American Association of Kidney Patients, is a national,
non-profit, membership-based, voluntary health organization
providing education, support and advocacy services to kidney
patients and their families.
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AKF,
the American Kidney Fund, is a national voluntary health
organization dedicated to improving the daily lives of people
with chronic kidney disease.
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E-Neph,
the complete Web site for the international renal care
community.
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NKF,
the National Kidney Foundation, is a voluntary health
organization seeking to prevent kidney and urinary tract
diseases, improve the health and well-being of individuals
affected by these diseases, and increase the availability of
all organs for transplantation.
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The American
Diabetes Association is the nation's leading nonprofit
health organization providing diabetes research, information
and advocacy. Its mission is to prevent and cure diabetes, and
to improve the lives of all people affected by diabetes.
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The American
Heart Association is a not-for-profit, voluntary health
organization funded by private contributions. Its mission is
to reduce disability and death from cardiovascular diseases
and stroke. These include heart attack, stroke (brain attack)
and related disorders.
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The American
Liver Foundation is the only national, voluntary
non-profit health agency dedicated to preventing, treating and
curing hepatitis and all liver diseases through research,
education and support groups.
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CLASS,
the Children’s Liver Association for Support Services, is an
all-volunteer, nonprofit organization dedicated to serving the
emotional, educational, and financial needs of families coping
with childhood liver disease and transplantation. Their goal
is to be both a service to families and a valuable resource
for the medical community.
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The Children's
Liver Alliance (CLA) is dedicated to empowering the hearts
and minds of children with liver disease (pre- and post-liver
transplant), their families and the medical professionals who
care for them.
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Second
Wind Lung Transplant Association, Inc. is dedicated to
improving the quality of life for lung transplant recipients,
lung surgery candidates, people with related pulmonary
concerns and their families, by providing support, love,
advocacy, education, information and guidance through a spirit
of service, adding years to their lives and life to their
years.
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Organ
Transplant Support, Inc. provides support, counseling,
education and informational medical programs and materials on
transplantation. Members include transplant recipients,
candidates, their families and health care professionals.
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TRIO,
Transplant Recipients International Organization, is an
independent, not-for-profit, international organization
committed to improving the quality of life of transplant
candidates, recipients, their families and the families of
organ and tissue donors.
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Transplant
Buddies is dedicated to the sharing of feelings and
thoughts about the transplant process.
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The National
Transplant Assistance Fund (NTAF) provides guidance and
emotional support to transplant patients by helping families
and friends organize, launch, and sustain a fundraising
campaign. NTAF also offers grants to eligible candidates.
Professional Organizations
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NATCO,
the North American Transplant Coordinators Organization, is
the professional society of more than 1,750 transplant
coordinators, and as such, is the largest group of transplant
professionals in North America.
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AST,
the American Society of Transplantation, is an organization of
1,300 transplant professionals dedicated to research,
education, advocacy and patient care in transplantation
science and medicine.
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ISHLT,
the International Society for Heart and Lung Transplantation,
has over 2200 members from over 45 countries, representing
over 10 different disciplines involved in the management and
treatment of end-state heart and lung disease.
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ITCS,
the International Transplant Coordinators Society is an
organization of transplant coordinators, both clinical and
procurement coordinators, who provide a major portion of the
infrastructure in which organ or tissue donation and
transplantation occur.
Organ Procurement Organizations
