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Explaining psychosocial and behavioral outcomes in childhood cancer survivors: A comparison of Latino and non-Latino survivors

Questions remain regarding explanations for psychosocial and behavioral outcomes among young adult survivors of childhood cancer, and particularly among ethnic minority survivors.

The intent of this work is to use a vigorous and systematic qualitative methodology to examine how childhood cancer survivors explain the impact of cancer on their lives. The focus of this work is on positive outcomes (perceived benefits and personal growth), negative psychosocial sequelae (depression, anxiety, somatic distress), and the adoption of health risk or health promoting behaviors (tobacco/alcohol use, sexual practices, cancer screening/protections, healthy diet, regular physician check-ups). Special attention is given to how survivors link their attitudes and beliefs about health and illness to current health practices.

The aims of this study are:

1. To assess and compare psychosocial health status and health behavior outcomes and their correlates for Latino and non-Latino survivors of childhood cancer.

2. To identify and compare trends among survivors that are indicative of positive outcomes, personal growth or perceived benefits attributable to cancer.

3. To elicit and compare descriptions and explanations from survivors as to how and why cancer has affected and/or continues to affect their lives. Particular attention is given to the role that attitudes, values, and beliefs play in their relation to psychosocial and behavioral outcomes.

Understanding how and why people respond and behave as a result of having had cancer is fundamental to designing appropriate and effective interventions.

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Updated 7/2/2002